Towards Personal Informatics Tools for Chronic Illness Management
Haley MacLeod, Anthony Tang, and Sheelagh Carpendale. (2013). Towards Personal Informatics Tools for Chronic Illness Management. In GRAND 2013: RNote Proceedings of the GRAND NCE 2013 Meeting.
Many people with chronic illness suffer from debilitating symptoms that inhibit normal day-to-day function. It is unclear how to design tools to support this – many see self-tracking tools as a burden to use. We report here on an interview study with 12 individuals with chronic illnesses who collect data about their conditions. We reflect on ways to support the design of tools that will be more easily adopted by engaging curiosity, self-discovery and exploration rather than focusing on behavior change.